All a parent wants is for their newborn to be healthy. So when Washington baby Harper Foy was born with a rare genetic condition that made her skin shed every four hours, her parents must’ve been worried sick.
Foy, who may be the youngest person in the world with this condition, has Harlequin Ichthyosis. Infants are born with hard and thick skin which can restrict movement.
WARNING GRAPHIC CONTENT: Harper Foy, from Washington, is the youngest person in the world with Harlequin Ichthyosis… https://t.co/YrYxzXZt54
— World Health News (@WorldHealthNews) August 17, 2016
Her skin grew 10 times faster than normal and she had to stay in the hospital for a month after she was born before she was able to go home.
The thick skin she was born with slowly began to shed, which is why infants born with the rare condition need to be taken care of at the neonatal intensive care unit.
The genetic condition is one that’s inherited recessively, which means the infant gets a recessive gene from each parent.
There’s no cure for the condition and the doctors thought it would kill her.
Foy’s mom said when her baby was born, she looked like an alien.
Today, Foy needs special care to tend to her condition. She needs a specific bath tub that has micro-bubbles in it so that her skin will stay hydrated. If you enjoy long soaks in the bath, just imagine how much this baby does.
She’ll have other issues as she gets older, such as some problems with her eyes and with body movement. However, she’s already beaten the doctor’s odds and is still alive and well today.
Every parent wants their child to have an easy time in life, but it is up to us as a society to make this a safer place for kids like Foy and her family to live in.